Read comments and updates direct from Mens Captain, Phil Charnley.
Hope House Hospice began as an amazing vision and is here today because enough people fought to keep the dream alive.
Sarah from North Wales ( Old Colwyn) helped set up the first hospice after the death of her three -year -old son Matthew. Matthew suffered from a rare metabolic syndrome with the family travelling to Helen House hospice in Oxford for two years. The family wanted something nearer for other parents so this is how Hope House came about. The wish for families never again having to deal alone with the short lives and inevitable death of their beloved children.
The hospice is actually named in memory of a tiny baby who died when she was just 10 months old.
Hope house cares for babies, children, young people and young adults with a range of conditions: –
1) Life threatening conditions for which curative treatment may be feasible but can fail.
2) Conditions where premature death is inevitable.
3) Progressive conditions where treatment is exclusively palliative.
4) Irreversible but non -progressive conditions causing severe disability, health complications and the likelihood pf premature death.
Examples of some conditions within these groups are – Cancer, Irreversible organ failures, Cystic fibrosis, Batten Disease, Muscular Dystrophy and Severe Cerebral Palsy.
A wide range of services are offered including some of which are: Respite Care, End of Life Care, Bereavement Support and Home Nursing.
Hope House is a place of welcome, colour, warmth and laughter and is often surprising to first time visitors – but a great big bonus as well.
My chosen charity is poignant and relevant to the Longhurst side of the family, and I hope that you will fully support me during the forthcoming year.